Well, my day started at about 0400...I had to be at the hospital by 0515 so Ryan could leave for work...of course i didn't quite make it on time, I was about 10 minutes late, but that's ok! No problem! So I get to the hospital and they tell me that Joshua will get his PICC Line today!!! Yeah!!! They will start about about 1:00pm. So! He has nothing to eat or drink ALL DAY.
Well, of course I'm getting nervous...They're going to put a small incision in my baby's arm and then insert basically what is a second vein in his vein!!! So I call my dear friend Cory and ask her if she'll sit with me. Of course she does! Thank you Cory! And Bryan for going home to watch the kids so she can sit with me! So as soon as she gets here they come and get me to bring Joshua in (they sedated him with Fentanol-I think that's how you spell it). Well, they also had a lady from the playroom come in with toys to keep him distracted. So, he's drowsy and she show's him a ball! THAT is his FAVORITE toy. Well, suddenly I realize that the nurse is about to start the incision, so I rush out, barely saying goodbye to Joshua and come back to my room. I don't know, not 30 minutes later a nurse comes in and tells me that they couldn't get the PICC Line in...WHAT! Yes, I said that! They couldn't get the PICC Line in! We have waited since monday to get the staffing here to do it!!! And then they couldn't! They tried BOTH ARMS! So, they said they will try again tomorrow....what that REALLY means is that they will try to try...it took four days to get the staff together in the first place, I am NOT optimistic about tomorrow. BUT! The Lord could work a miracle! Shall we pray??
Oh, and my other news...if they can't get the PICC Line in they will probably have to do surgery... Poor baby. I don't know that I'm ready for that thought yet. So, the next news is that we couldn't get a home health nurse until about Wenesday...so we are going to be here for at least another week....hmmm....I have no words for that.
Anyway! So, this is my day and it is now time for bed...Let's keep our fingers crossed for the PICC Line tomorrow!!!
Thursday, December 6, 2007
Tuesday, December 4, 2007
Kyle Finally Got to Visit Joshua!!!
I realized later after I wrote about what Joshua had, that I didn't say how he got it or anything like that, so let me sum it up! Some bug/bacteria got into his blood stream and basically, either by choice or some "trauma" (which could have just been from falling down), landed there and just infected the area. It is a bacterial infection, not viral.
We have been here since Thursday and the following day RSV season started so anyone under the age of 12 was not allowed to come into the rooms! What timing! Poor Kyle has been wanting to see Joshua for so long, but he was never able to come into the room. Well, yesterday, finally, Kyle got to see Joshua. I wheeled him out in a wagon and we met Kyle, Grandma, and GG in the cafeteria. As soon as Kyle saw me, he ran to me saying, "Mommy!" well, I reached out my arms to hug him and as soon as he saw Joshua in the wagon behind me he veered around me and went straight to Joshua, even MORE excited!!! It was the cutest thing! He loves his brother so much! He is so loving to him, it's the greatest thing to see. Well, of course when it was time to go back to the room, Kyle didn't want him to go, and he got upset, but eventually we made it back into there...
Today Joshua was supposed to have a PICC line inserted, but they didn't have the staffing, and it doesn't look like they will until the 10th now... but I could be wrong (I hope) because once that is in, we are one step closer to leaving! Joshua also had his first visit with the Physical Therapist and did great! He sat up on his own to put a car on something, and then he pulled himself up to stand!!! I was so proud! Such improvement already!
Well, after the physical therapist, his IV started beeping...uh oh...we had been having problems with it, it kept kinking up. Well, we get back to the room and the nurse looks at it, and it has to be changed... This is the worst part! He has already been through the first IV, which bursted and leaked all over, then they pricked his other hand, but that blood vessel blew, and THEN they got it in his foot. Well, he is now on his fourth poke, third IV...let's hope this one lasts until the PICC line can be implanted!
I've been so blessed by all the people in my life who have come to help me through all of this. I really don't have the appropriate words of thanks. I just get so teary when I think about all that has been done and continues to be done... Thank you to all for all your love and support!
We have been here since Thursday and the following day RSV season started so anyone under the age of 12 was not allowed to come into the rooms! What timing! Poor Kyle has been wanting to see Joshua for so long, but he was never able to come into the room. Well, yesterday, finally, Kyle got to see Joshua. I wheeled him out in a wagon and we met Kyle, Grandma, and GG in the cafeteria. As soon as Kyle saw me, he ran to me saying, "Mommy!" well, I reached out my arms to hug him and as soon as he saw Joshua in the wagon behind me he veered around me and went straight to Joshua, even MORE excited!!! It was the cutest thing! He loves his brother so much! He is so loving to him, it's the greatest thing to see. Well, of course when it was time to go back to the room, Kyle didn't want him to go, and he got upset, but eventually we made it back into there...
Today Joshua was supposed to have a PICC line inserted, but they didn't have the staffing, and it doesn't look like they will until the 10th now... but I could be wrong (I hope) because once that is in, we are one step closer to leaving! Joshua also had his first visit with the Physical Therapist and did great! He sat up on his own to put a car on something, and then he pulled himself up to stand!!! I was so proud! Such improvement already!
Well, after the physical therapist, his IV started beeping...uh oh...we had been having problems with it, it kept kinking up. Well, we get back to the room and the nurse looks at it, and it has to be changed... This is the worst part! He has already been through the first IV, which bursted and leaked all over, then they pricked his other hand, but that blood vessel blew, and THEN they got it in his foot. Well, he is now on his fourth poke, third IV...let's hope this one lasts until the PICC line can be implanted!
I've been so blessed by all the people in my life who have come to help me through all of this. I really don't have the appropriate words of thanks. I just get so teary when I think about all that has been done and continues to be done... Thank you to all for all your love and support!
Monday, December 3, 2007
Joshua
Well, I really don't even know where to start...
First things first though, even though it took so long to figure out what was wrong with Joshua, I believe that it was all God's perfect timing in the whole thing! He is so great and good, and has placed good doctors and friends in our lives to help! So thank you to all who have helped in any way! Without you, I'd be in a bed next to Joshua!!! Thank you and I love you all, and I thank God he has put you all in my life!
So! That said here it is... For the last four weeks Joshua has been in a lot of pain and we didn't know why. My very active baby just stopped walking and sitting up and he would just lay there. He was so happy before, and then he just kind of got a new mood that said, "I'm always going to be in pain and when I'm having a good day, you'll glimpse the old me!" I missed him!!! He's been in and out of the doctors office for constipation and gas...well his pain was just getting worse everyday and I had no idea what to do. Finally my mom called a family friend who happened to be a pediatrician and he came by to take a look at Joshua...Thank you to him we finally got some action!!! I was on my way to the emergency room with Joshua when I got a call from his Pediatrician who told me she set it up for Joshua to be squeezed in for a CT Scan. When he had the scan done they saw a mass and bone destruction. From there they referred me to the Children's Hospital. Well, we get there and they told us they are pretty sure it is "just" and infection with an absess on it, not a tumor. YEAH!!! However, it will need to have long term treatment at least 4-6 weeks. We were also told that we would be here at the hospital for at least a week... Poor little Joshua! He's been in so much pain for so long!!! I'm just so happy that they have figured out what is wrong and are treating him!!!
They started him on the antibiotics that night, and by day three he was feeling MUCH better! He is on pain meds, and I'm telling you! After not being able to move for four weeks, having the pain meds makes him so much more happy and mobile! He still isn't walking or sitting, but he's much more comfortable moving around, so he does it as much and as often as possible! Yeah!!! We are now on day 4 at the hospital and we had the consultaion for a PICC line. An IV that will be inserted into the vein and allow him to eventualy receive his antibiotics from home.
Still not sure when that will be exactly, but we should be there by next week. Also, last night he had a small fever that kept coming and going....could be part of the infection. Right now they are doing more tests to make sure that there is none of the bug/bacteria in his stomach as well.
I don't think I told you what he had yet...Oops!!! Joshua has a spinal infection called Diskitis, but it did spread to his bones, so it is actually Osteomyelitis. He has destruction to his bones and discs, but hopefully they will regenerate on their own. I still will be talking to the bone doctors, but I'm not sure when exactly. As of right now, they are not going to do surgery. I am just so thankful right now that he is finally getting help! Who wants to hear that they found a mass on their baby's spine!? Not fun! Well, here are some pictures for you all!!!
First things first though, even though it took so long to figure out what was wrong with Joshua, I believe that it was all God's perfect timing in the whole thing! He is so great and good, and has placed good doctors and friends in our lives to help! So thank you to all who have helped in any way! Without you, I'd be in a bed next to Joshua!!! Thank you and I love you all, and I thank God he has put you all in my life!
So! That said here it is... For the last four weeks Joshua has been in a lot of pain and we didn't know why. My very active baby just stopped walking and sitting up and he would just lay there. He was so happy before, and then he just kind of got a new mood that said, "I'm always going to be in pain and when I'm having a good day, you'll glimpse the old me!" I missed him!!! He's been in and out of the doctors office for constipation and gas...well his pain was just getting worse everyday and I had no idea what to do. Finally my mom called a family friend who happened to be a pediatrician and he came by to take a look at Joshua...Thank you to him we finally got some action!!! I was on my way to the emergency room with Joshua when I got a call from his Pediatrician who told me she set it up for Joshua to be squeezed in for a CT Scan. When he had the scan done they saw a mass and bone destruction. From there they referred me to the Children's Hospital. Well, we get there and they told us they are pretty sure it is "just" and infection with an absess on it, not a tumor. YEAH!!! However, it will need to have long term treatment at least 4-6 weeks. We were also told that we would be here at the hospital for at least a week... Poor little Joshua! He's been in so much pain for so long!!! I'm just so happy that they have figured out what is wrong and are treating him!!!
They started him on the antibiotics that night, and by day three he was feeling MUCH better! He is on pain meds, and I'm telling you! After not being able to move for four weeks, having the pain meds makes him so much more happy and mobile! He still isn't walking or sitting, but he's much more comfortable moving around, so he does it as much and as often as possible! Yeah!!! We are now on day 4 at the hospital and we had the consultaion for a PICC line. An IV that will be inserted into the vein and allow him to eventualy receive his antibiotics from home.
Still not sure when that will be exactly, but we should be there by next week. Also, last night he had a small fever that kept coming and going....could be part of the infection. Right now they are doing more tests to make sure that there is none of the bug/bacteria in his stomach as well.
I don't think I told you what he had yet...Oops!!! Joshua has a spinal infection called Diskitis, but it did spread to his bones, so it is actually Osteomyelitis. He has destruction to his bones and discs, but hopefully they will regenerate on their own. I still will be talking to the bone doctors, but I'm not sure when exactly. As of right now, they are not going to do surgery. I am just so thankful right now that he is finally getting help! Who wants to hear that they found a mass on their baby's spine!? Not fun! Well, here are some pictures for you all!!!
Thursday, October 11, 2007
Thank you Grammie Beck!!!
Well, Kyle got his scooter delivery yestereday! He was so excited when he realized the package was for him! I told him he could open it as soon as he picked up the rest of his toys...well, that was the FASTEST I have ever seen him move and clean up all at once! WOW! SEND HIM THINGS MORE OFTEN!!! :D
So, we go to open it, and as soon as he realized what it was, he was thrilled to death. He asked, how did she know I wanted this? It's just what I always wanted! Can we build it now? Can I ride it? So, of course, I get my camera to get it on video and he clams up. He gets all shy, but he wants to see himself as soon as it done taking pictures and video! So he is loving his scooter and learning to ride it.
Well, as soon as Joshua saw the scooter he started "crying" for one himself. He was looking at the box pointing so I opened it and showed him that there wasn't one for him. Well! You'd think you took his favorite blanket away the way he carried on! Crazy little boy. So I closed the box back up and of course, he is trying to open it, because he's sure that it will magically appear. So, he just stands there whining for his turn as he watches his brother in envy riding along on his scooter.
Eventually later before bed, I took him around on the scooter and he had a blast! But make no mistake, when his turn was up, he let me know how upset he was at me that I dared to end his turn, and why gosh darn it, can't he do it himself!!!
So, we go to open it, and as soon as he realized what it was, he was thrilled to death. He asked, how did she know I wanted this? It's just what I always wanted! Can we build it now? Can I ride it? So, of course, I get my camera to get it on video and he clams up. He gets all shy, but he wants to see himself as soon as it done taking pictures and video! So he is loving his scooter and learning to ride it.
Well, as soon as Joshua saw the scooter he started "crying" for one himself. He was looking at the box pointing so I opened it and showed him that there wasn't one for him. Well! You'd think you took his favorite blanket away the way he carried on! Crazy little boy. So I closed the box back up and of course, he is trying to open it, because he's sure that it will magically appear. So, he just stands there whining for his turn as he watches his brother in envy riding along on his scooter.
Eventually later before bed, I took him around on the scooter and he had a blast! But make no mistake, when his turn was up, he let me know how upset he was at me that I dared to end his turn, and why gosh darn it, can't he do it himself!!!
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